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Project 7: Coordination of Care for Children With Juvenile Arthritis
It is a persistent popular myth that arthritis is an old person’s disease, but some 300,000 children in the United States suffer from a form of arthritis, known as juvenile arthritis. Many state and federal programs exist that could benefit children with arthritis and their parents and caregivers. Often, such programs are a bureaucratic maze that parents and caregivers cannot navigate. As a result, these programs remain under-utilized. Previous research indicates that children with arthritis who are also members of minority groups are especially disadvantaged when it comes to proper care.
The goal of this project is to help parents and caregivers of children with arthritis better understand and use more effectively state and federal programs. Specifically, the project will launch an online Juvenile Arthritis Resource Center. The center will be a site linked to the general MARRTC Web site, offering access to and explanation of various programs, laws and policies designed to help children with arthritis. Partners in this project are the American Juvenile Arthritis Organization, The Beach Center on Families and Disability at the University of Kansas, the Missouri Arthritis and Osteoporosis Program and the Missouri Minority Health Alliances. Click here for the JAhelp.org Web site.
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